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Welcome to our new Patients Advisory Board!
Home > Announcements > Welcome to our new Patients Advisory Board!

Welcome to our new Patients Advisory Board!

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As we grow the foundation, we added a Patients Advisory Board so we could have better representation of the SJIA patients helping us make decisions about how best to serve our goals of finding a cure for SJIA. We have added three parents of kids with SJIA. We have been working with all three of them for some time, and know them well. They understand the purpose of the foundation and its philosophy and approach towards helping move SJIA treatment forwards.

The three parents are: Leah Bush, Sabrina Dunlap and Kari Cupp. You can learn more about them here.

Now that they are on board, you can expect us to pick up momentum in organizing more events and fundraising to support SJIA research.

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Systemic JIA Foundation

6 days ago

Systemic JIA Foundation
The SJIA / MAS working group in Europe has two great talks coming up on June 13th (10:30am -12 pm est). Event is free but you need to register: form.jotform.com/231316175510345Speakers are- Dr Pui Lee (Harvard) who will speak about mTor pathways in SJIA-Dr Randy Cron (UAB) who will speak about Hyperinflammation in HLH. #SJIA #MAS #pres See you there! ... See MoreSee Less

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Systemic JIA Foundation

2 weeks ago

Systemic JIA Foundation
www.youtube.com/watch?v=Vxoy5328MZcOldie but goldie. And kids enjoy this video too. This video from Cincinnati Children's is about angry macrophages in HLH but most of it applies to MAS as well. Also, it explains why Bone Marrow Transplants (BMT) can help. As some of you know, this treatment is increasingly being used in cases of refractory SJIA as well.#HLH #MAS #BMT #Macrophages ... See MoreSee Less

Max The Angry Macrophage | A Story about HLH | Cincinnati Children's

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www.cincinnatichildrens.org/hlhMeet Max, and learn about the rare immune disorder called hemophagocytic lymphohistiocytosis, better known as HLH. In ...

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Location 3584 Outlook Avenue, Cincinnati OH, 45208

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This website is provided for educational and informational purposes only. Systemic JIA Foundation is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site authors and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Systemic JIA Foundation endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.