Lily Malinowsky was an energetic 1 year old, when last September she started having unexplained fevers and rashes, and was ultimately diagnosed with Systemic Juvenile Idiopathic Arthritis (or SJIA). She was started on Canakinumab (Ilaris) soon after diagnosis.
Ella was born on a Tuesday in summer of 2011. It was like any warm, late summer day in San Diego, but when she entered the world, it was clear to me it was different. The first time I held her, I was studying her features and it was like looking in the mirror. She had long eyelashes, beautiful complexion, and dimples that would grab attention from admirers and grandparents. Her health was good and everything seemed normal.