The largest Rheumatology conference, the Annual Meeting of the American College of Rheumatology is next week. For the first time, Systemic JIA Foundation will have a non-profit booth there. We will bring our foundation materials, some newly created for this event, and be ready to connect with physicians, researchers, pharma and other non-profits about SJIA.
Our booth number is 2123
If you will be at ACR, come by.
Given the spread of Covid-19, we are regretfully postponing the SJIA Family Conference scheduled at the end of May. We are very disappointed but still hope to hold the conference at the end of summer (we will reevaluate in
a 2-3 months if end of July seems possible).
In the meantime, we will be launching the virtual program from the SJIA Foundation - starting with a virtual Expert Panel about Covid, featuring SJIA & Still's experts and your questions. The session will be conducted via Zoom so you can join via phone, tablet or computer. We will announce the details of this session soon.
Happy Rare Disease day from the SJIA Foundation. The rarest day in the calendar to celebrate the rare people in our lives who we fight for. And all the dedicated, brilliant doctors, other foundations, and parents we work with.
www.rarediseaseday.org/
Rare Disease Day 2020 - 29 Feb
www.rarediseaseday.org
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a pub...We finally have the dates for SJIA Family conference - Friday May 29th to Saturday May 30th. We will be helping coordinate second opinion appointments and research participation for the SJIA patient - that will probably happen on May 27th - 28th. Signups coming soon!
3584 Outlook Avenue, Cincinnati OH, 45208
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