We finally have photos from the SJIA Family Day last Saturday (July 22nd) at Cincinnati Childrens Hospital. These are just the initial set of photos – we will be posting more soon.
Go here to view the rest of the photos.
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The SJIA / MAS working group in Europe has two great talks coming up on June 13th (10:30am -12 pm est). Event is free but you need to register: form.jotform.com/231316175510345![]()
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Speakers are![]()
- Dr Pui Lee (Harvard) who will speak about mTor pathways in SJIA![]()
-Dr Randy Cron (UAB) who will speak about Hyperinflammation in HLH. ![]()
#SJIA #MAS #pres ![]()
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See you there!
www.youtube.com/watch?v=Vxoy5328MZc![]()
Oldie but goldie. And kids enjoy this video too. ![]()
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This video from Cincinnati Children's is about angry macrophages in HLH but most of it applies to MAS as well. Also, it explains why Bone Marrow Transplants (BMT) can help. As some of you know, this treatment is increasingly being used in cases of refractory SJIA as well.![]()
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#HLH #MAS #BMT #Macrophages
Max The Angry Macrophage | A Story about HLH | Cincinnati Children's
www.youtube.com
www.cincinnatichildrens.org/hlhMeet Max, and learn about the rare immune disorder called hemophagocytic lymphohistiocytosis, better known as HLH. In ... Did you know that there are no approved medications for MAS (Macrophage Activation Syndrome)? ![]()
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We are gathering patient feedback for a MAS clinical trial to help get new treatments approved. ![]()
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If you / your child has ever had MAS, can you please fill this out? Will take a few short minutes we promise. ![]()
form.jotform.com/231313917254654![]()
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#MAS #SJIA #AOSD #stills #PatientsKnowBest #ClinicalTrials
Patient Feedback for MAS Clinical Trials
form.jotform.com
Please click the link to complete this form.Contact Us
3584 Outlook Avenue, Cincinnati OH, 45208
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