Patient Resources

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Resource Documents (to download)

SJIA Parents Facebook Group

If you are a parent / guardian of a child with SJIA, then consider joining the SJIA Facebook group. Its an amazing resource for SJIA Families – a private support community with more than 600 members!

Additionally, the Autoinflammatory Alliance runs a Facebook group for Autoinflammatory patients which is useful for understanding SJIA in the context of other Autoinflammatory diseases.

Other Patient Groups

• Autoinflammatory Alliance and Facebook Group
• ENCA: European Network for Children with Arthritis
• Ican Ireland: Irish Children’s Arthritis Network
• Stills Disease Facebook Group

Organizations

• CARRA (Childhood Arthritis & Rheumatology Research Alliance): Focuses on research. More on Clinical research than the Basic Science
• Arthritis Foundation: A large foundation focused on all types of Arthritis. Organizes JA conferences and advocates on behalf of Arthritis patients.
• Still’s Disease Foundation
• ACR
• EULAR

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