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Resource Documents (to download)
SJIA Foundation: Mission & Impact
Resource sheet for SJIA Patients
SJIA Parents Facebook Group
If you are a parent / guardian of a child with SJIA, then consider joining the SJIA Facebook group. Its an amazing resource for SJIA Families – a private support community with more than 600 members!
Additionally, the Autoinflammatory Alliance runs a Facebook group for Autoinflammatory patients which is useful for understanding SJIA in the context of other Autoinflammatory diseases.
Other Patient Groups
- Autoinflammatory Alliance and Facebook Group
- ENCA: European Network for Children with Arthritis
- Ican Ireland: Irish Children’s Arthritis Network
- Stills Disease Facebook Group
- CARRA (Childhood Arthritis & Rheumatology Research Alliance): Focuses on research. More on Clinical research than the Basic Science
- Arthritis Foundation: A large foundation focused on all types of Arthritis. Organizes JA conferences and advocates on behalf of Arthritis patients.
- Still’s Disease Foundation
ACR 2020 Conference: Nov3-9 Virtual
PRES 2020: Prague | September 23-26 2020
- NextGen Therapies for SJIA & MAS: October – Date TBD (Virtual)