NextGen Therapies in SJIA, Still's & MAS, Feb 2022 - Systemic Juvenile Idiopathic Arthritis Foundation

NextGen Therapies in SJIA, Still’s & MAS

Organized by: Systemic JIA Foundation

Where: Virtually

When: Wed, Feb 16th – Fri, Feb 18th, 2022 | Morning 8:00 am – 1:00pm EST

Conference Agenda is now online!

REGISTER FOR ON-DEMAND ACCESS!

The recordings of the sessions are available until 31st August 2022. If you missed the conference, you can still register and access the recordings immediately. Your login details will be sent via email as registration confirmation.

General Registration

CONFERENCE SUMMARY

The goal of this year’s NextGen conference (as with NextGen in previous years) is to advance therapies for SJIA, Still’s Disease and MAS. The specific focus this year is on clinical trials and options for refractory disease.

We invite all stakeholders to the table – scientists, clinicians, patient and caregiver representatives, FDA / EMA and pharmaceutical companies.

Topics include:

Unmet Needs in SJIA, Still’s and MAS
Barriers to and opportunities for successful clinical trials
Opportunity for Natural History Studies as a comparator arm for clinical trials
Learning from other patient foundations: Investigator-initiated trials, Nof1 trials, etc.
Diagnostic criteria for SJIA & Adult Onset Still’s Disease
Therapies for refractory disease: Focus on Hematopoietic Stem Cell Transplantation for refractory SJIA, especially SJIA-LD

Working Sessions: In an effort to go beyond discussion, the conference includes several working sessions focused on research studies or clinical trials.

Patient Ambassadors: In an effort to include the patient voice at the conference, we are working with our patient community to identify advocates who can represent the diversity within the community. We plan to include:

From US, Europe and Canada (we hope to expand to other parts of the world in future conferences)
Representing the different of disease phenotypes (e.g., systemic disease, chronic arthritis or lung disease)
Representing the different hospitals and centers that Accelerate research study is targeting

You can find out more about the Patient Ambassadors’ Program and apply here.

REGISTRATION

Registration is FREE for everyone.

Proceeding: As with NextGen 2019, the talks, discussions and working sessions will be published as Proceedings.

CONTACT

If you want to get in touch about conference program, email us at contact@systemicjia.org

General registration enquiries can be submitted to the conference secretariat at systemicjia@mci-group.com

NextGen Therapies in SJIA, Still’s & MAS, Feb 2022