connecting the dots to find a cure for Systemic Juvenile Idiopathic Arthritis

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:supportGroupHeader-02Fighting a rare disease can be lonely. Whether you are a parent looking to join the fight against SJIA or a researcher interested in SJIA, join us.

If you are a patient, you will be added to our patient database, you will receive our newsletters with helpful primers and summaries of the latest research. You will also find out about clinical trials and research studies you might be eligible for.

If you are a researcher, you will find out about funding opportunities. You will also receive periodic updates about our patient database which might help you plan your research.

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Systemic JIA Foundation

6 months ago

Systemic JIA Foundation
The SJIA / MAS working group in Europe has two great talks coming up on June 13th (10:30am -12 pm est). Event is free but you need to register: form.jotform.com/231316175510345Speakers are- Dr Pui Lee (Harvard) who will speak about mTor pathways in SJIA-Dr Randy Cron (UAB) who will speak about Hyperinflammation in HLH. #SJIA #Mas #pres See you there! ... See MoreSee Less

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Systemic JIA Foundation

6 months ago

Systemic JIA Foundation
www.youtube.com/watch?v=Vxoy5328MZcOldie but goldie. And kids enjoy this video too. This video from Cincinnati Children's is about angry macrophages in HLH but most of it applies to MAS as well. Also, it explains why Bone Marrow Transplants (BMT) can help. As some of you know, this treatment is increasingly being used in cases of refractory SJIA as well.#HLH #Mas #BMT #Macrophages ... See MoreSee Less

Max The Angry Macrophage | A Story about HLH | Cincinnati Children's

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www.cincinnatichildrens.org/hlhMeet Max, and learn about the rare immune disorder called hemophagocytic lymphohistiocytosis, better known as HLH. In ...

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Location 3584 Outlook Avenue, Cincinnati OH, 45208

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This website is provided for educational and informational purposes only. Systemic JIA Foundation is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site authors and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Systemic JIA Foundation endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.