Kineret is the most common biologic drug for treating SJIA. It’s a very effective medicine. However, since it has a short half-life it requires daily injections. Worse, since it comes packaged in syringes, taking a dose higher than 100mg requires multiple shots! There has to be a better way ;->
I made a quick video showing how to decant multiple syringes of Kineret into a single larger syringe. It’s not rocket science but it takes a little bit of practice to get right. If it means your kid needs only one shot per day instead of two, it’s totally worth it! You can even save the leftovers from the second syringe for the next day, which will save your insurance company thousands of dollars a month as well. So this is a win-win for everybody.
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Disclaimer: This blog contains general information about Systemic JIA as well as personal insights from the Systemic JIA community. Opinions and experiences shared by members of our community, including but not limited to patients with SJIA / Stills Disease and their families, belong solely to the blog post author and do not represent the opinion of the Systemic JIA Foundation. In addition, this site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor with all medical questions and before making any changes to your treatment.
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Thanks so much for the demonstration. May I ask how heavy your son was when you had to increase the dosage? Was it a mg of Kineret per kg of body weight thing? I ask because here in my country there is very little experience with Kineret and there are only 2-3 of us on it.
Probably around 12kgs. Younger kids can need higher dosages since their metabolism is faster.
Have you joined the Systemjic JIA FB Parents group? Its a great place to discuss such questions. https://www.facebook.com/groups/SJIAParents