Our hearts go out to the family of Ethan Cox, a young boy in Cleveland who passed away from SJIA related complications over the holidays. His parents colleagues have organized a memorial fund in his honor, and have given generously. Please contribute if you can. Our mission is to find therapies so that tragedies like this don’t happen.
The proceedings of the NextGen Therapies for SJIA & MAS conference have now been published. In an open-access journal, so any patient can read and share.
www.systemicjia.org/nextgen-conference-proceedings-peds-rheum/
www.systemicjia.org
The proceedings of the NextGen Therapies for SJIA & MAS 2012 have been published in the July 2020 edition of the Pediatric Rheumatology journal online. The proceedings summarize the scientific session...Given the spread of Covid-19, we are regretfully postponing the SJIA Family Conference scheduled at the end of May. We are very disappointed but still hope to hold the conference at the end of summer (we will reevaluate in
a 2-3 months if end of July seems possible).
In the meantime, we will be launching the virtual program from the SJIA Foundation - starting with a virtual Expert Panel about Covid, featuring SJIA & Still's experts and your questions. The session will be conducted via Zoom so you can join via phone, tablet or computer. We will announce the details of this session soon.
Happy Rare Disease day from the SJIA Foundation. The rarest day in the calendar to celebrate the rare people in our lives who we fight for. And all the dedicated, brilliant doctors, other foundations, and parents we work with.
www.rarediseaseday.org/
Rare Disease Day 2020 - 29 Feb
www.rarediseaseday.org
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a pub...
3584 Outlook Avenue, Cincinnati OH, 45208
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