(Lily’s story was shared by her father, Luke Malinowsky, to help other parents learn about the dangers of Macrophage Activation Syndrome (MAS) and new options to treat it.)
Lily Malinowsky was an energetic 1 year old, when last September she started having unexplained fevers and rashes, and was ultimately diagnosed with Systemic Juvenile Idiopathic Arthritis (or SJIA). She was started on Canakinumab (Ilaris) soon after diagnosis.