We are excited to announce that we are one of the recipients of the Rare As One grant from the Chan Zuckerberg Foundation. We will be part of the Rare as One network for the next 24 months, and benefit from both CZI experts and from learning from the other rare disease organizations in the network.

We wrote this grant along with Alexei Grom and Grant Schulert from Cincinnati Children’s Hospital, and look forward to working closely with them on the next phase of our organization’s work.

Our goal has always been to find effective treatments and ultimately a cure for refractory Systemic JIA (or Systemic Juvenile Idiopathic Arthritis). This grant gives us renewed vigor to reach that goal.

We are also announcing a new initiative from our foundation: Accelerating Therapies for Refractory SJIA. This project will weave together many of our efforts into one. But most importantly, we hope to extend our work beyond Cincinnati Children’s Hospital to a few other centers which treat refractory SJIA patients. We also plan to work with other organizations in the field. More details about the Accelerate project here.