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connecting the dots to find a cure for Systemic Juvenile Idiopathic Arthritis

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Our simple and urgent focus is finding a cure for Systemic JIA, also known as Still's Disease, and Macrophage Activation Syndrome (MAS).

World's Still's Day 2026 Event

Still Fighting Still's?

What to do When Treatments Fall Short
Practical Answers & New Options with Dr. Alexei Grom

To mark World Still’s Disease Day, join us for a special session with leading expert Dr. Alexei Grom from Cincinnati Children’s. He’ll walk through next steps for tough, stubborn cases and treatment options. The talk will be followed by a live Q&A and a relaxed, patient & family discussion.
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 September 12, 2026
10:30am – 11:30am EST // 4:30pm – 5:30pm CET
 
NextGen 2026 Conference

NextGen Therapies 2026

November 6-7, 2026
Orlando, FL

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Watch Our Previous NextGen 2024 Videos
Systemic JIA Foundation Shop

The Systemic JIA Foundation is a non-profit dedicated to accelerating research & treatment for Systemic JIA (Systemic Juvenile Idiopathic Arthritis), also known as Still’s Disease and associated complications such as Macrophage Activation Syndrome.

Still’s & SJIA in Europe

SJIA & Still's in Europe


Watch the recording of our European event held on January 10th, 2026. Patients, families, and physicians from Europe shared stories, conversations, and the latest Still’s/SJIA research and treatments.

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Recent Events

In our mission to find a cure, we bring researchers, patients, clinicians, pharma and regulators together at our events.

SJIA Social Hour for Rare Disease Day

Rare Disease Day 2024

Organized by the SJIA Foundation to celebrate global Rare Disease Day... read more

CME Lectures Series for MAS / Secondary HLH

CME Lecture Series for MAS / Secondary HLH

In collaboaration with Clinical Viewpoints®, we organized a series of CME lectures by MAS experts. Lectures were free and open to doctors from all over the world. s... read more

NextGen Therapies for SJIA & MAS

SJIA Family Education Day at Cincinnati Children's

Meeting brought together researchers, patients, FDA, EMA and Pharma. Was virtual due to Covid. read more

Our Facebook Page

Systemic JIA Foundation

3 days ago

Systemic JIA Foundation
Representing the Systemic JIA Foundation at the 33rd European Paediatric Rheumatology Congress. 🧡This group is bringing the voices, experiences, and needs of the Systemic JIA/Stills Disease community to the table - and making sure patients and caregivers are part of the conversations shaping the future of care and research.#Pres2026 #emerge ... See MoreSee Less

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Systemic JIA Foundation

5 days ago

Systemic JIA Foundation
Hello, parents and caregivers of children with lung disease associated with systemic juvenile idiopathic arthritis (sJIA). Your family may have an opportunity to participate in research being conducted by investigators from CARRA (the Childhood Arthritis and Rheumatology Research Alliance).Research studies like these are important for improving our understanding of systemic JIA and associated lung disease, learning more about how these conditions affect children, and helping researchers develop better approaches to treatment and care.To learn whether your child may be eligible for the Systemic JIA Lung Disease Study or any current CARRA research studies, please speak with your child's rheumatologist. Eligibility and study availability may vary by research study and treatment center. Participating institutions for the Systemic JIA Lung Disease Study are listed below.AL — University of Alabama at BirminghamAZ — Phoenix Children's HospitalCA — Stanford University Medical CenterCA — University of California, San Francisco Medical CenterCO — Children's Hospital ColoradoFL — University of FloridaFL — Johns Hopkins All Children's HospitalIA — University of Iowa Hospitals and ClinicsIL — Ann & Robert H. Lurie Children's HospitalIN — Indiana University School of MedicineMA — Boston Children's HospitalMI — University of Michigan Medical CenterMI — Helen DeVos Children's HospitalMN — University of MinnesotaMO — Children's Mercy HospitalMO — St. Louis Children's HospitalNJ — Hackensack University Medical CenterNY — Albany Medical CollegeNY — Children's Hospital at MontefioreOH — Cincinnati Children's Hospital Medical CenterOH — Nationwide Children's HospitalPA — Children's Hospital of PhiladelphiaPA — UPMC Children's Hospital of PittsburghTN — Monroe Carell Jr. Children's Hospital at VanderbiltTX — UT Southwestern Medical CenterTX — Baylor College of MedicineUT — University of Utah Hospitals and ClinicsWA — Seattle Children's HospitalWI — University of Wisconsin ... See MoreSee Less
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Systemic JIA Foundation

1 week ago

Systemic JIA Foundation
This talk is happening tomorrow but there is still space to sign up now at systemicjia.org/stillsday📅 September 12, 2026⏰ 10:30 AM–12:30 PM EDT🌎 Patients & families welcome!🧡 When standard treatments aren’t enough, what comes next?Join the Systemic JIA Foundation on September 12th for a special World Still’s Disease Day session with leading expert Dr. Alexei Grom of Cincinnati Children’s.We’ll talk practical next steps for difficult Still’s/SJIA cases - including MAS, persistent arthritis, lung and liver complications, newer treatment options, and clinical trials - followed by a live Q & A + patient chat. We’ll also share info about our upcoming NextGen conference scheduled for November. 📅 September 12, 2026⏰ 10:30 AM–12:30 PM EDT🌎 Patients & families welcome!register at systemicjia.org/stillsday ... See MoreSee Less

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Location 220 Valencia Dr, Los Altos, CA 94022

Email Address info@systemicjia.org

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Disclaimer

This website is provided for educational and informational purposes only. Systemic JIA Foundation is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site authors and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Systemic JIA Foundation endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.